Managing your pain – An evening with a specialist

Please try to join us on Tuesday November 1st to hear our guest speaker, Patricia McCrystal CPsychol & AFBPsS, enlighten us about the difficulties (and possible solutions) when dealing with persistent pain.Patricia is a Chartered Psychologist & Registered Counselling Psychologist who specialises in helping patients with persistent pain issues....

Sep052016

PIPS offer free help services in September

We are covering two topics this month as below. PIPS offer a number of free help services for anyone feeling desperate or struggling with any issue. They offer a home counselling service for bed bound/ housebound patients. The experienced reflexologist will provide an interactive session, learning us how to...

Hope 4 ME & Fibro Northern Ireland - Announcements Page

Hope 4 ME & Fibro Northern Ireland - Announcements Page shared a post.Saturday, August 24th, 2019 at 3:28pm

Wow. We need #QUB to get involved in something like this too!
“Further details on the recently announced project funded by the Canadian Government from one of the equipment suppliers involved.”

"“Myalgic Encephalomyelitis (ME) is possibly the last medical enigma of the 21st Century,” Dr. Alain Moreau, Scientific Director of the Viscogliosi Laboratory in Molecular Genetics of Musculoskeletal Diseases in Montreal and the program’s principal investigator, said in a press release. “Our scientific partnership with Hexoskin will be instrumental to address the complexity of ME given its clinical heterogeneity and phenotypic variability overtime.”

“The Hexoskin wearable technologies will allow researchers and clinicians to investigate people severely affected by ME - housebound or bedridden - which is rarely done due to their limited capacity to participate in clinical studies,” he added."

Science for ME

Further details on the recently announced project funded by the Canadian Government from one of the equipment suppliers involved.

"“Myalgic Encephalomyelitis (ME) is possibly the last medical enigma of the 21st Century,” Dr. Alain Moreau, Scientific Director of the Viscogliosi Laboratory in Molecular Genetics of Musculoskeletal Diseases in Montreal and the program’s principal investigator, said in a press release. “Our scientific partnership with Hexoskin will be instrumental to address the complexity of ME given its clinical heterogeneity and phenotypic variability overtime.”

“The Hexoskin wearable technologies will allow researchers and clinicians to investigate people severely affected by ME - housebound or bedridden - which is rarely done due to their limited capacity to participate in clinical studies,” he added."

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Hope 4 ME & Fibro Northern Ireland - Announcements Page shared a post.Friday, August 23rd, 2019 at 11:37pm

Great news for Canada.

Science for ME

Canadian government statement on their investment of $1.4m into biomedical ME research that was announced yesterday.

"People living with ME, and their families and caregivers, can now look forward to a more promising future as a result of a $1.4M investment in a new national network that will create critically needed scientific knowledge about the causes of, and treatments for, myalgic encephalomyelitis."

"Minister Petitpas Taylor made the announcement together with Dr. Alain Moreau, a professor at the University of Montreal. Working with a team of patient partners, clinicians, and more than 20 researchers, Dr. Moreau will lead the network that will fill gaps in biomedical ME research and build capacity for research into the disease here in Canada."

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Hope 4 ME & Fibro Northern Ireland - Announcements Page shared a post.Friday, August 23rd, 2019 at 1:55am

Today, while visiting CHU Sainte-Justine, the federal Minister of Health, along with Dr. Alain Moreau, a professor at Université de Montréal, announced an investment of $1.4M to establish a research network that will study M.E. and improve the quality of life of more than 580,000 Canadians living with this disease. Click the link to watch the live stream of the announcement #pwme #mecfs

https://livestream.com/CHUSteJustine/events/8789125

UK ME CFS Biobank

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Hope 4 ME & Fibro Northern Ireland - Announcements PageThursday, August 22nd, 2019 at 11:34am

Today’s News Letter!
The ‘treatments are available’ text under one of the images, and the headline, are NOT quotes from the charity!

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Hope 4 ME & Fibro Northern Ireland - Announcements Page shared a post.Wednesday, August 21st, 2019 at 10:11pm

ME Research UK is looking for an individual with experience of medicine or relevant scientific research to join their Board of Trustees.

Voices from the Shadows

ME Research UK is looking for an individual with experience of medicine or relevant scientific research to join their Board of Trustees.

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