Hope 4 ME & Fibro Northern Ireland - Announcements Page

Hope 4 ME & Fibro Northern Ireland - Announcements PageThursday, August 17th, 2017 at 1:33pm

The programme on ME care in Northern Ireland, from NVTV is now available:

Background: We were invited by NVTV, a local television station, to take part in a interview highlighting the lack of specialist NHS services for ME patients in Northern Ireland.

The invited panel included speakers from three separate organisations.

Sally Burch, Secretary for Hope 4 ME & Fibro Northern Ireland, was our spokesperson for the event.

Maeve Hully, CEO for the Patient and Client Council NI explained the vital role of the P&CC in supporting our campaign for ME services in Northern Ireland.

Clare Ogden, Head of Communications and Policy for Action for M.E. explained their organisation's findings on the lack of adequate ME services in a recently published UK wide survey, which included Northern Ireland.

In the time allocated to answering questions, it was impossible to cover all the complicated politics surrounding the disease but as usual Sally has done an amazing job to educate viewers.

http://www.nvtv.co.uk/shows/focal-point-extra-wednesday-16th-august-2017-me-report/

Focal Point Extra Wednesday 16th August 2017: ME Report | NVTV

Studio discussion on the new report focusing on specialist services in the UK for patients with M.E.

nvtv.co.uk

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Hope 4 ME & Fibro Northern Ireland - Announcements PageFriday, August 11th, 2017 at 3:05pm

As part of our campaign for specialist ME services in Northern Ireland, these booklets will now be going out to strategic decision makers for NHS commissioning services and key government officials.
Special Edition on the PACE Trial from the Journal of Health Psychology. (Online here http://journals.sagepub.com/toc/hpqa/22/9 ) Available for £6 from the publisher - or book a copy to collect at our September meeting.

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Hope 4 ME & Fibro Northern Ireland - Announcements PageWednesday, August 9th, 2017 at 2:35pm

Some welcome media coverage!
We are delighted to have been invited by NVTV, a local television station, to take part in a interview highlighting the lack of specialist NHS services for ME patients in Northern Ireland.

The invited panel included speakers from three separate organisations.
Sally Burch, Secretary for Hope 4 ME & Fibro Northern Ireland, was our spokesperson for the event.

Maeve Hully, CEO for the Patient and Client Council NI explained the vital role of the P&CC in supporting our campaign. (We enlisted the help of the P&CC in 2013, and by informing them of the plight of both ME and fibromyalgia patients.The P&CC continue to ensure the patient voice is being heard and have played a leading role in negotiations towards new services for both illnesses.)

Clare Ogden, Head of Communications and Policy for Action for M.E. explained their organisation's findings on the lack of adequate ME services in a recently published UK wide survey, which included Northern Ireland.

In the time allocated to answering questions, it was impossible to cover all the complicated politics surrounding the disease but as usual Sally has done an amazing job to educate viewers. The 30 minute programme should be released in the next couple of weeks. Watch this space.

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Hope 4 ME & Fibro Northern Ireland - Announcements PageMonday, July 31st, 2017 at 9:52pm

Exciting times!
http://med.stanford.edu/news/all-news/2017/07/researchers-id-biomarkers-associated-with-chronic-fatigue-syndrome.html

Researchers identify biomarkers associated with chronic fatigue syndrome severity

Stanford investigators used high-throughput analysis to link inflammation to chronic fatigue syndrome, a difficult-to-diagnose disease with no known cure.

med.stanford.edu

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Hope 4 ME & Fibro Northern Ireland - Announcements PageSaturday, July 29th, 2017 at 3:39pm

Website back online!
https://hope4mefibro.org/

Home - Hope 4 ME Fibro NI

Hope4MEFibro is a non-profit registered charity based in N.Ireland. Solely run by volunteer patients to support others suffering from M.E. and Fibromyalgia.

hope4mefibro.org

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