We are grateful to the Countess of Mar for addressing the misinformation being repeatedly displayed by media outlets.
This formal complaint has been sent to the BBC:
Nov182016
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Science for ME
Further details on the recently announced project funded by the Canadian Government from one of the equipment suppliers involved.
"“Myalgic Encephalomyelitis (ME) is possibly the last medical enigma of the 21st Century,” Dr. Alain Moreau, Scientific Director of the Viscogliosi Laboratory in Molecular Genetics of Musculoskeletal Diseases in Montreal and the program’s principal investigator, said in a press release. “Our scientific partnership with Hexoskin will be instrumental to address the complexity of ME given its clinical heterogeneity and phenotypic variability overtime.”
“The Hexoskin wearable technologies will allow researchers and clinicians to investigate people severely affected by ME - housebound or bedridden - which is rarely done due to their limited capacity to participate in clinical studies,” he added."
"“Myalgic Encephalomyelitis (ME) is possibly the last medical enigma of the 21st Century,” Dr. Alain Moreau, Scientific Director of the Viscogliosi Laboratory in Molecular Genetics of Musculoskeletal Diseases in Montreal and the program’s principal investigator, said in a press release. “Our scientific partnership with Hexoskin will be instrumental to address the complexity of ME given its clinical heterogeneity and phenotypic variability overtime.”
“The Hexoskin wearable technologies will allow researchers and clinicians to investigate people severely affected by ME - housebound or bedridden - which is rarely done due to their limited capacity to participate in clinical studies,” he added."
Science for ME
Canadian government statement on their investment of $1.4m into biomedical ME research that was announced yesterday.
"People living with ME, and their families and caregivers, can now look forward to a more promising future as a result of a $1.4M investment in a new national network that will create critically needed scientific knowledge about the causes of, and treatments for, myalgic encephalomyelitis."
"Minister Petitpas Taylor made the announcement together with Dr. Alain Moreau, a professor at the University of Montreal. Working with a team of patient partners, clinicians, and more than 20 researchers, Dr. Moreau will lead the network that will fill gaps in biomedical ME research and build capacity for research into the disease here in Canada."
"People living with ME, and their families and caregivers, can now look forward to a more promising future as a result of a $1.4M investment in a new national network that will create critically needed scientific knowledge about the causes of, and treatments for, myalgic encephalomyelitis."
"Minister Petitpas Taylor made the announcement together with Dr. Alain Moreau, a professor at the University of Montreal. Working with a team of patient partners, clinicians, and more than 20 researchers, Dr. Moreau will lead the network that will fill gaps in biomedical ME research and build capacity for research into the disease here in Canada."
UK ME CFS Biobank
Today, while visiting CHU Sainte-Justine, the federal Minister of Health, along with Dr. Alain Moreau, a professor at Université de Montréal, announced an investment of $1.4M to establish a research network that will study M.E. and improve the quality of life of more than 580,000 Canadians living with this disease. Click the link to watch the live stream of the announcement #pwme #mecfs
https://livestream.com/CHUSteJustine/events/8789125
https://livestream.com/CHUSteJustine/events/8789125
Voices from the Shadows
ME Research UK is looking for an individual with experience of medicine or relevant scientific research to join their Board of Trustees.
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Friday, August 9th, 2019 at 8:23pm
Please share and considering this U.K. based vital research
https://t.co/KOlR9V7xEo https://t.co/ESazgRL460
Please share and considering this U.K. based vital research
https://t.co/KOlR9V7xEo https://t.co/ESazgRL460
Saturday, June 29th, 2019 at 1:58pm
@CatEye0611 It gets worse just realised I’m posting from charity a/c lol it’s me @JoanMcParland
@CatEye0611 It gets worse just realised I’m posting from charity a/c lol it’s me @JoanMcParland
Saturday, June 29th, 2019 at 1:57pm
@CatEye0611 That doesn’t even make sense due to being upright 4 whole hrs yesterday!
@CatEye0611 That doesn’t even make sense due to being upright 4 whole hrs yesterday!