It’s been a long time, waiting for an opportunity to improve the image of our group, but we now have our brand new little place on the Internet with our new website. We trust that you will find everything that you’re looking for and remember to check out our...

Seeking Solutions – Summary of Presentations
Seeking Solutions for ME and Fibromyalgia The Long Gallery, Parliament Buildings, Stormont, Belfast. Tuesday, 30th May 2017, 2-6 pm The “Seeking Solutions for ME and Fibromyalgia” conference in Stormont, on Tuesday 30th May 2017, was hosted by Robbie Butler MLA and chaired by Jo-Anne Dobson. The speakers included myalgic...

Northern Irish GPs to receive information on the physiological nature of ME.
We have some very important news to share, with permission from the Health and Social Care Board Lead Commissioner for ME and fibromyalgia, Mr. Iain DeBoys. Dr. Ian Clements, Chairperson of the Health and Social Care Board has confirmed, ALL 365 General Practitioner (GP) practices in Northern Ireland will...

Pre-Conference Information
Our conference for 2017, called “Seeking Solutions for ME & Fibromyalgia”, will be hosted by Robbie Butler, MLA, in the prestigious Long Gallery at Stormont. It is a unique and unmissable opportunity for healthcare professionals to gain a deeper understanding of myalgic encephalomyelitis and fibromyalgia. We have gathered a...

Annual General Meeting 2017
Notice of Annual General Meeting to be held: On Tuesday 3rd January 2017 At 7pm – Mourne Country Hotel – Members only. Guests welcome to join meeting after AGM finishes at 7.30pm Agenda: 1. Apologies 2. Minutes of the last AGM 3. Chair’s Report 4. Treasurer’s Report 5. Election...

Complaint made to the BBC
We are grateful to the Countess of Mar for addressing the misinformation being repeatedly displayed by media outlets. This formal complaint has been sent to the BBC:

Managing your pain – An evening with a specialist
Please try to join us on Tuesday November 1st to hear our guest speaker, Patricia McCrystal CPsychol & AFBPsS, enlighten us about the difficulties (and possible solutions) when dealing with persistent pain.Patricia is a Chartered Psychologist & Registered Counselling Psychologist who specialises in helping patients with persistent pain issues....

Demonstrators at Stormont urge more research into chronic disease ME
A MAJOR demonstration urging more research into M.E. was held at Stormont on Tuesday as part of a global day of action. Protests took part in 25 cities across the world, including Belfast, Melbourne, London and New York. Pairs of shoes were placed at each demonstration to represent the...

Act now to prevent ME crisis- MLA warns
A Northern Ireland charity has backed a local MLA’s comments that more support is required for sufferers with ME. MLA Robbie Butler has challenged the Stormont Health Minister to “act swiftly to give additional support and facilities to ME sufferers and their carers before such conditions become the next...

Invisible illness steps into the light at Stormont
For too long Myalgic Encephalomyelitis (ME) has been known as an ‘invisible illness’ with sufferers left with little support and no medical way forward. Across the globe there are millions who live with the condition, and with the knowledge that there is no cure. Those millions feel that they...

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